It’s Been a While, eh!

As always in cancerland, no news is good news. So if you don’t see a lot of updates here it means all is goooooood! I looked back at the last update an it was in May. MAY!!!! Thing is I’ve taken to updating on Facebook. You know, all the cool kids seem to use it so I figured I should too. And I’m all over this maximum # of characters thing Facebook has. Forcing me to be succinct is a time saver. For everyone. So most folks know the latest, but I’ll give a quick updates on what’s been happenin’ lately. Back in August Reese had her 1 year post treatment scans. And she freakin’ aced them! If you look back at previous updates you’ll see mention of this funny little spot that remained in Reese’s chest. Picked up by the MIBG, but not the CT or PET scans. Well damned if that little spot was gone from the MIBG! We flipped out of course. When Denise our Nurse Practioner called to tell me the news I think I broke her ear drum. At minimum gave her a good case of tinnitus for the weekend. So we feel a sense of closure. That said (there’s always a “that said”) we’re fully aware that spot could appear again on the next scan which is slated for December. Doesn’t mean it’s back, just means it really wasn’t gone. I.e. the scans aren’t always reliable. And we feel like we’re in the hot zone for relapse. Every single little change in Reese kicks off internal panic. From feeling tired, to saying her leg hurts (that’ll happen if you spend an entire day hopping around like a bunny rabbit) to not wanting to finish dinner. Normal things cause rapid onset panic. We stay vigilant but don’t let that shit it ruin our fun! Reese started JK in Sept and LOVES it. We were concerned about her being so young – she’s not 4 until December and she’s in a mixed class with SK kids. Some of the kids are almost 6! But she loves her teacher (so do I), has learned a ton already and has made some good friends. So far so good. All the other life-stuff is fantastic too. We’re just having a great time living life. Reese is so hyped up over Halloween she can barely contain herself. Kids are awesome.

That’s the update. Yeah, updates here will be a bit less frequent (god willing I won’t need to post too often). But thanks for checking in anyway!

2 responses to “It’s Been a While, eh!”

  1. Amber (Reese's mom)

    Hi Stephen,

    I’m so sorry to hear about your little boy. Yeah, the whole NB ordeal is a full on freak out for everyone. Somehow it’s our kids that get US through it. My thoughts are with you and your little man. Hang in there!

  2. Stephen Knox

    Glad to read that all is well with your little one. My wee boy just recently diagnosed with high risk NB. Shitting ourselves to say the least!!! Just starting chemo cycle 6 tomorrow. Hopefully we can be free of it one day like you guys… (not that you’re ever free of it- but you know what i mean!)

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